Chris Schuette – Indiebear Music

November4th

14 Comments

Isla has another big day coming up. As I mentioned before, her cochlear implant for her right ear has been working out very well.  As a result, Patty and I have decided that she will have the second implant for her left ear. The surgery is scheduled for this coming Monday.

Even though we’ve been down this road before, we’re still nervous about any kind of hospital visit. This isn’t a decision we take lightly, but Isla loves being able to hear the world around her, (or at least the world to the right of her.) With the hard work of some amazing medical professionals, we’re confident that she will be able to experience so much more, such as that really boss surround sound system in the rumpus room.

Patty has been absolutely amazing through all of this. While I’ve been posting “Simpsons” clips and writing about allegedly drunken Presidential candidates, Patty did something truly special for our little girl.  There are lots of dolls out there for all types of kids; dolls with glasses, dolls with wheelchairs, but Patty was unable to find a doll with cochlear implants. So she made one.

Using only puffy paint, a doll Isla picked out at Target, and her innate MacGuyver-esque talents, Patty painstakingly applied the paint to form two little cochlear implants on the doll.  You can read all about it at Patty’s site, but she was kind enough to let me post some pictures here. What a great mom!

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14 Comments

  • Comment by Veronica — December 1, 2011 @ 9:39 am

    I have just discovered you blog and I being a mother myself what Patty did filled my eyes with tears, God bless your beautiful family always…

    ps… yes my email adress is @hotmail but I'm not close to 80 yet ;-)

  • Comment by cjschuette — December 1, 2011 @ 10:13 am

    Man, I feel like such a jerk for that “hotmail=80″ crack! Especially since I actually have a hotmail account! Oh well, live and learn, right?

    Thank you so much for your kind words. I assume you are referring to Patty’s post about How to Make Cochlear Implants for Dolls. I was absolutely floored when I saw this. She’s is a great mom and incredibly creative.

    Thanks again!

  • Comment by melissa — October 23, 2012 @ 11:38 pm

    I have almost 3 year old daughter, Lilly, who was born with bilateral microtia/atresia. Basically no ears or canals on both sides. She is deaf. She wears a BAHA (bone anchored hearing aide)on a headband. That will later be implanted. I make her headbands, and also make them for other children. I love this idea of the puffy paint for baby dolls, ive been trying to think of something. Thanks! Oh, i found this on pintrest!

  • Comment by cjschuette — October 24, 2012 @ 7:46 am

    Thank you for the nice comment! I have to confess my ignorance, as I am not familiar with bilateral microtia/atresia. (Looks like I’ll be doing some reading!) I’d love to learn more; do you have a blog? If not, you should! Best of luck to you and your daughter.

    With regard to the cochlear implants for dolls, that is the amazing work of my wife, Patty. She’s the talented one around here. She said the key was to make sure our daughter actually picked out the doll so that there would already be a connection. Take care!

  • Comment by melissa — October 24, 2012 @ 8:35 am

    Thank you for responding. Not many people are familiar with Lillys condition, I certainly had never heard of it until she was born. Lilly has a BAHA, works different than the cochlear implant. Isnt technology amazing! I dont know what we would do with out it. Its give my child the chance to hear the world. Things we take for granted. No I have no blog, just a facebook page, Ears for angels headband, you and your wife should come check it out. Thank you for your time. Ps. Your daughter is precious!!

  • Comment by Christie — November 6, 2012 @ 9:04 am

    My almost 5 month old daughter has been recently diagnosed profoundly deaf and I loved this post about making a cochlear implant doll! Hopefully she will be having her first surgery around may, and we really want her to celebrate who she is, what a better way then giving her a doll like her! Thanks so much for sharing!

  • Comment by cjschuette — November 8, 2012 @ 5:43 pm

    That’s exciting news! Good luck to you and your family! My wife deserves all the credit for the doll. You can read her blog at http://pattyanne.net.

    Please let me know how everything goes. And if you have a blog, I’d love to hear about it!

  • Comment by Christie — November 8, 2012 @ 9:39 pm

    I already following her blog, it’s so helpful. I feel like I have some insight into what it will be like for Molly. We do have a blog http://www.prayedforchild.blogspot.com

  • Comment by Kiley — November 13, 2012 @ 9:06 pm

    I stumbled upon your blog that was shared on a Parents of deaf/HOH children… Our 17 mos old daughter’s name is also Isla, profoundly deaf and just received a cochlear implant in her right side (it shocked me a little as i read!). What a great idea your wife had for the doll! I may have to try my hand at it…Good luck to you and your family!

  • Comment by cjschuette — December 1, 2012 @ 6:46 am

    Hi Kiley. Sorry for the late reply. I haven’t been very good about updating my site lately.

    What an amazing coincidence! Our daughter’s legal name is “Elisabeth,” but we liked Isla as a nickname. How is your daughter liking her new CI? Do you have a blog? If so, I’d love to read it. If not, my family and I would still love to hear about her progress. Best of luck to you and your family!

  • Comment by Laurie — January 17, 2013 @ 6:59 pm

    I work for a pre-school with deaf/hard of hearing children ages 3 to 5. I have 2 kids with CI’s (girl and boy). I would like to try my hand and make a doll for them, maybe even try one with regular hearing aids. I bet they would get a kick out of them. Since I started working with these children, they have a very special place in my heart.

  • Comment by cjschuette — February 5, 2013 @ 9:25 pm

    Thank you for the nice comment, Laurie. Our daughter still loves her doll! I know your students would love one as well!

  • Comment by Vicki Cox — February 16, 2013 @ 5:11 am

    Great idea for the doll!! Your daughters doll picture was shared with parents from Australia on an online support group for parents of deaf children ( hope you don’t mind… Isn’t the www amazing!)

    I have 2 daughters with bilateral cochlear implants. I was looking at your info and noticed that your a musician…..just wanted to share that our daughters just love music and my younger daughter has been learning the piano! Not bad for a profoundly deaf kid!! Something that we NEVER though she could achieve when we first got their diagnosis!!

    Hopefully you will be amazed with your daughter too! It’s been a long hard journey but there has also been lots of precious moments!

  • Comment by cjschuette — February 22, 2013 @ 8:04 pm

    Hi Vicki, My wife gets all the credit for the doll! I was amazed at how well it turned out, and it is never too far away from our daughter.

    I’m also glad to hear that your daughters love music, and it is a huge step that your younger one is learning to play an instrument. Isla loves to dance and listen to me play piano, and lately she’s been showing more interest in playing a little bit herself. I learn something new from her every day. and seeing how she processes music makes me appreciate it in a whole new way. Sounds like we both have some amazing kids!

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